Health Care Data (UK0056)
Overview
At-a-Glance
Action Plan: United Kingdom – Second National Action Plan 2013-2015
Action Plan Cycle: 2013
Status: Inactive
Institutions
Lead Institution: NHS England
Support Institution(s): CSOs: Macmillan Cancer Support, Nuffield Trust
Policy Areas
Access to Information, Health, Open Data, Public Participation, Public Service DeliveryIRM Review
IRM Report: United Kingdom End-of-Term Report 2013-2015, United Kingdom Progress Report 2013-2015
Starred: No
Early Results: Marginal
Design i
Verifiable: Yes
Relevant to OGP Values: Access to Information , Civic Participation , Technology
Implementation i
Description
The English healthcare system is already one of the most transparent in the world – publishing more information than any other country. It is now taking further steps to transform access to data for patients, doctors, researchers, and academics. This ambition is central to NHS England’s strategy of delivering high quality care for all by improving the quality, efficiency and equity of health services. Greater transparency will empower patients and citizens to hold the health service to account and at the same time support life sciences research so that more life saving treatments can be found.
The key milestones for this commitment are:
-overarching clinical indicators – for ten new clinical areas (including cancer, children’s services, mental health and stroke), data will be made available to tell the public how well services are performing and meeting their needs; the first of these will be available by Summer 2014 with more available over the following 12 months. Once it is available, we will be able to use the care.data information service outlined above to support the development of this information
-more clinician level data – building on the successful publication of surgeon level data from national clinical audits across ten specialties earlier this year, NHS England will extend the programme to new treatments and conditions (throughout 2014)
-General Practice information – new information about the quality of care provided by GP practice and associated health outcomes will be made available both as open data and also through public facing channels such as NHS Choices (Winter 2013)
-social care transparency – information about care services for around 10,000 care homes collected by the NHS Choices website will be made available as open data in the Summer of 2014
-extending the Friends and Family test – the successful Friends and Family Test programme that asks patients whether they would recommend the hospital services they used to friends or family members will be extended to cover GP practices, community and mental health services in December 2014 and all other NHS services by the end of March 2015
-patients in control – newly developed Patient Centred Outcome Measurement (PCOM) tools will provide new insights into how well services for people with 20 different rare and complex conditions are meeting the needs of their patients. These measures will expand the evidence base for the effectiveness of treatments, therapies and interventions and help improve the quality of patient care. In developing the PCOM tools, NHS England will support on-line communities that will both help to develop the tools, and provide mutually beneficial help, advice and support to one another
-better open data – to help people to locate and use data about health more easily NHS England, with the Health and Social Care Information Centre, will comprehensively review the way that data is made available through data.gov.uk. This will ensure that health information is easy to find and tagged. We will also increase the availability and accessibility of key reference data which is available as open data including geographical information (Summer 2014)
-by June 2014, clinical data from GP practices will be linked to data from all hospitals providing NHS funded care through the care.data initiative outlined above. This will allow us to develop and publish new insights into the quality of services and to better understand the way that services interact, an issue that we know is important for patients
We have an ambitious programme of work to support patients to take greater control of their own health and wellbeing. This will be supported by their General Practice which will offer a range of digital services. Our ambition is that by March 2015 everyone who wishes to will be able to:
-order repeat prescriptions and book appointments online
-view their own GP record, including test results, online
-have secure electronic communication with their practice
Alongside this, we are working with leading practices across the country to support development and evaluation of longer term ambitions, including the use of e-consultations and more interactive records access, ahead of wider adoption.
Commitments
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Grants Data
UK0090, 2019, Access to Information
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Digital Charter
UK0091, 2019, Access to Information
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Open Policy Making
UK0092, 2019, Public Participation
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Open Contracting Data
UK0093, 2019, Access to Information
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Natural Resource Transparency
UK0094, 2019, Access to Information
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Innovation in Democracy Programme
UK0095, 2019, Public Participation
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Sustainable Open Government
UK0096, 2019, Capacity Building
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Local Transparency
UK0097, 2019, Access to Information
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Beneficial Ownership – UK
UK0063, 2016, Anti-Corruption
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Natural Resource Transparency
UK0064, 2016, Access to Information
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Anti-Corruption Strategy
UK0065, 2016, Anti-Corruption
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Anti-Corruption Innovation Hub
UK0066, 2016, Anti-Corruption
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Open Contracting
UK0067, 2016, Access to Information
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Grants Data
UK0068, 2016, Access to Information
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Elections Data
UK0069, 2016, Access to Information
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Revising Freedom of Information Act Code of Practice
UK0070, 2016, Access to Information
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Identifying and Publishing Core Data Assets
UK0071, 2016, Access to Information
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Involving Data Users in Shaping the Future of Open Data
UK0072, 2016, Access to Information
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Better Use of Data Assets
UK0073, 2016, Access to Information
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GOV.UK
UK0074, 2016, Access to Information
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Ongoing Collaborative Approach to Open Government Reform
UK0075, 2016, E-Government
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Open Government at All Levels
UK0076, 2016, Public Participation
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Open Policy-Making and Public Engagement
UK0077, 2016, Capacity Building
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Public Sector Innovation
UK0078, 2016, Access to Information
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OCDS Implementation
UK0079, 2016, Access to Information
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Open-Up Government
UK0080, 2016, Access to Information
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Open Data Plan
UK0081, 2016, Access to Information
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Open Data Service
UK0082, 2016, Access to Information
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Statswales
UK0083, 2016, Access to Information
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Data Research Centre Wales
UK0084, 2016, E-Government
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Government Social Research Publication Protocol
UK0085, 2016, E-Government
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Gov.Wales
UK0086, 2016, E-Government
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Code of Practice in Supply Chains
UK0087, 2016, Labor
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National Indicators for Wales
UK0088, 2016, Fiscal Openness
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Well-Being Duty
UK0089, 2016, Anti-Corruption
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National Information Infrastructure
UK0042, 2013,
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NHS England Website and Network
UK0043, 2013, Health
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Revised Local Authories Data Transparency Code
UK0044, 2013, Capacity Building
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Transparent Social Investment Market
UK0045, 2013, Access to Information
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Manage and Capture Digital Records
UK0046, 2013, Capacity Building
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Cross-Government Anti-Corruption Plan
UK0047, 2013, Anti-Corruption
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Company Beneficial Ownership Information
UK0048, 2013, Anti-Corruption
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Access to Police Records
UK0049, 2013, Justice
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Transparency in Construction
UK0050, 2013, Infrastructure & Transport
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Legislative Openness
UK0051, 2013, Anti-Corruption
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Whistleblowing
UK0052, 2013, Anti-Corruption
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Open Contracting
UK0053, 2013, Anti-Corruption
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Open Contracting Scotland
UK0054, 2013, Anti-Corruption
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International Aid Transparency
UK0055, 2013, Access to Information
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Health Care Data
UK0056, 2013, Access to Information
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Open Policy Making
UK0057, 2013, E-Government
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Sciencewise
UK0058, 2013, E-Government
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Publication of Draft Legislation
UK0059, 2013, Open Parliaments
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OpenDataCommunities Programme
UK0060, 2013, Access to Information
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PSI Re-Use Directive
UK0061, 2013, Access to Information
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Extractive Transparency
UK0062, 2013, Access to Information
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Ensuring a Clear Process to Support Reduction in Collection of ‘Unnecessary Data’
UK0024, 2011, E-Government
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Developing Data.Gov.Uk and Identifying Other Digital Channels to Support Users
UK0025, 2011,
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Evidence and Databases Behind Policy Statements
UK0026, 2011, E-Government
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Data Underlying Surveys
UK0027, 2011, E-Government
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Examining Ways for Improving the Use of Existing Published Data
UK0028, 2011, E-Government
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Stimulate the Market for Innovative Use of Open Data
UK0029, 2011, Access to Information
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Spend up to 5% of Budget Support on Accountability
UK0030, 2011, E-Government
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Include the OGP Eligibility Criteria to Determine Readiness for UK Budget Support
UK0031, 2011, Aid
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Publish Aid Information from All ODA Government Departments
UK0032, 2011, Aid
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Use a Single Domain for Government Services
UK0033, 2011, E-Government
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Mandate ‘Channel Shift’
UK0034, 2011, E-Government
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Go Online for All Consultations
UK0035, 2011, E-Government
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Develop Practical Guidelines on Departmental Access to Internet and Social Media
UK0036, 2011, Civic Space
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Open Data and Application Interfaces in Ways That Encourage Businesses
UK0037, 2011, Access to Information
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Create Cross-Government Standards on APIs
UK0038, 2011, Public Participation
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Establish Standardised Formats for User-Satisfaction Data
UK0039, 2011, Public Participation
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Provide Government Documents in Open Standard Format
UK0040, 2011, Access to Information
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Implement Crowd-Sourcing and Engagement Processes
UK0041, 2011, Public Participation
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New Power to Secure Release of Valuable Datasets
UK0001, 2011,
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New, Higher Cost Cap for FOI
UK0002, 2011, Access to Information
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Meaningful Disincentives
UK0003, 2011,
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Maximum Time Limits
UK0004, 2011, Access to Information
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Altered Procurement Rules
UK0005, 2011,
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Mandating Phased Introduction of ‘Public by Default’
UK0006, 2011, E-Government
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Formalising Public Data Principles
UK0007, 2011,
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Having in Place an Open Data Compliance Monitoring Process
UK0008, 2011,
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Making Clear the Minimum Citizens Can Expect on Publication and Quality of Data
UK0009, 2011,
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Ensuring a Line of Continuous Improvement for Public Service Providers
UK0010, 2011, Access to Information
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Encourage Continuous Improvement
UK0011, 2011,
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Setting Out How Citizens Can Challenge Where There Is Failure in the Process
UK0012, 2011, Public Participation
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Establishing an Obligation to Consider and Act on User Feedback
UK0013, 2011, Public Participation
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Making Clear That Licenses Must Cover Free, Commercial Re-Use
UK0014, 2011,
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Merge Information Asset Registers…Into a Single Data Inventory
UK0015, 2011,
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Set Consistent Expectations of the Appropriate Quality of Meta-Data
UK0016, 2011, Records Management
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For Data Co-Ordinated Across Government, Set Definitions
UK0017, 2011, E-Government
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Introducing Corporate Responsibility at Transparency Board Level
UK0018, 2011,
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Strengthening and Broadening the Public Sector Transparency Board
UK0019, 2011, Anti-Corruption
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Bringing the Sector Transparency Board Model to Other Parts of Public Sector
UK0020, 2011, Anti-Corruption
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Reviewing the Existing Governance and Regulatory Model
UK0021, 2011,
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Establishing a Framework for Public Service Providers Data Inventories
UK0022, 2011, Records Management
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Developing a Clear Methodology to Support Intelligent Inventories
UK0023, 2011,