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United Kingdom

Health Care Data (UK0056)

Overview

At-a-Glance

Action Plan: United Kingdom – Second National Action Plan 2013-2015

Action Plan Cycle: 2013

Status: Inactive

Institutions

Lead Institution: NHS England

Support Institution(s): CSOs: Macmillan Cancer Support, Nuffield Trust

Policy Areas

Access to Information, Health, Open Data, Public Participation, Public Service Delivery

IRM Review

IRM Report: United Kingdom End-of-Term Report 2013-2015, United Kingdom Progress Report 2013-2015

Starred: No

Early Results: Marginal

Design i

Verifiable: Yes

Relevant to OGP Values: Access to Information , Civic Participation , Technology

Potential Impact:

Implementation i

Completion:

Description

The English healthcare system is already one of the most transparent in the world – publishing more information than any other country. It is now taking further steps to transform access to data for patients, doctors, researchers, and academics. This ambition is central to NHS England’s strategy of delivering high quality care for all by improving the quality, efficiency and equity of health services. Greater transparency will empower patients and citizens to hold the health service to account and at the same time support life sciences research so that more life saving treatments can be found.
The key milestones for this commitment are:
-overarching clinical indicators – for ten new clinical areas (including cancer, children’s services, mental health and stroke), data will be made available to tell the public how well services are performing and meeting their needs; the first of these will be available by Summer 2014 with more available over the following 12 months. Once it is available, we will be able to use the care.data information service outlined above to support the development of this information
-more clinician level data – building on the successful publication of surgeon level data from national clinical audits across ten specialties earlier this year, NHS England will extend the programme to new treatments and conditions (throughout 2014)
-General Practice information – new information about the quality of care provided by GP practice and associated health outcomes will be made available both as open data and also through public facing channels such as NHS Choices (Winter 2013)
-social care transparency – information about care services for around 10,000 care homes collected by the NHS Choices website will be made available as open data in the Summer of 2014
-extending the Friends and Family test – the successful Friends and Family Test programme that asks patients whether they would recommend the hospital services they used to friends or family members will be extended to cover GP practices, community and mental health services in December 2014 and all other NHS services by the end of March 2015
-patients in control – newly developed Patient Centred Outcome Measurement (PCOM) tools will provide new insights into how well services for people with 20 different rare and complex conditions are meeting the needs of their patients. These measures will expand the evidence base for the effectiveness of treatments, therapies and interventions and help improve the quality of patient care. In developing the PCOM tools, NHS England will support on-line communities that will both help to develop the tools, and provide mutually beneficial help, advice and support to one another
-better open data – to help people to locate and use data about health more easily NHS England, with the Health and Social Care Information Centre, will comprehensively review the way that data is made available through data.gov.uk. This will ensure that health information is easy to find and tagged. We will also increase the availability and accessibility of key reference data which is available as open data including geographical information (Summer 2014)
-by June 2014, clinical data from GP practices will be linked to data from all hospitals providing NHS funded care through the care.data initiative outlined above. This will allow us to develop and publish new insights into the quality of services and to better understand the way that services interact, an issue that we know is important for patients
We have an ambitious programme of work to support patients to take greater control of their own health and wellbeing. This will be supported by their General Practice which will offer a range of digital services. Our ambition is that by March 2015 everyone who wishes to will be able to:
-order repeat prescriptions and book appointments online
-view their own GP record, including test results, online
-have secure electronic communication with their practice
Alongside this, we are working with leading practices across the country to support development and evaluation of longer term ambitions, including the use of e-consultations and more interactive records access, ahead of wider adoption.

Commitments

  1. Grants Data

    UK0090, 2019, Access to Information

  2. Digital Charter

    UK0091, 2019, Access to Information

  3. Open Policy Making

    UK0092, 2019, Public Participation

  4. Open Contracting Data

    UK0093, 2019, Access to Information

  5. Natural Resource Transparency

    UK0094, 2019, Access to Information

  6. Innovation in Democracy Programme

    UK0095, 2019, Public Participation

  7. Sustainable Open Government

    UK0096, 2019, Capacity Building

  8. Local Transparency

    UK0097, 2019, Access to Information

  9. Beneficial Ownership – UK

    UK0063, 2016, Anti-Corruption

  10. Natural Resource Transparency

    UK0064, 2016, Access to Information

  11. Anti-Corruption Strategy

    UK0065, 2016, Anti-Corruption

  12. Anti-Corruption Innovation Hub

    UK0066, 2016, Anti-Corruption

  13. Open Contracting

    UK0067, 2016, Access to Information

  14. Grants Data

    UK0068, 2016, Access to Information

  15. Elections Data

    UK0069, 2016, Access to Information

  16. Revising Freedom of Information Act Code of Practice

    UK0070, 2016, Access to Information

  17. Identifying and Publishing Core Data Assets

    UK0071, 2016, Access to Information

  18. Involving Data Users in Shaping the Future of Open Data

    UK0072, 2016, Access to Information

  19. Better Use of Data Assets

    UK0073, 2016, Access to Information

  20. GOV.UK

    UK0074, 2016, Access to Information

  21. Ongoing Collaborative Approach to Open Government Reform

    UK0075, 2016, E-Government

  22. Open Government at All Levels

    UK0076, 2016, Public Participation

  23. Open Policy-Making and Public Engagement

    UK0077, 2016, Capacity Building

  24. Public Sector Innovation

    UK0078, 2016, Access to Information

  25. OCDS Implementation

    UK0079, 2016, Access to Information

  26. Open-Up Government

    UK0080, 2016, Access to Information

  27. Open Data Plan

    UK0081, 2016, Access to Information

  28. Open Data Service

    UK0082, 2016, Access to Information

  29. Statswales

    UK0083, 2016, Access to Information

  30. Data Research Centre Wales

    UK0084, 2016, E-Government

  31. Government Social Research Publication Protocol

    UK0085, 2016, E-Government

  32. Gov.Wales

    UK0086, 2016, E-Government

  33. Code of Practice in Supply Chains

    UK0087, 2016, Labor

  34. Starred commitment National Indicators for Wales

    UK0088, 2016, Fiscal Openness

  35. Starred commitment Well-Being Duty

    UK0089, 2016, Anti-Corruption

  36. National Information Infrastructure

    UK0042, 2013,

  37. NHS England Website and Network

    UK0043, 2013, Health

  38. Revised Local Authories Data Transparency Code

    UK0044, 2013, Capacity Building

  39. Transparent Social Investment Market

    UK0045, 2013, Access to Information

  40. Manage and Capture Digital Records

    UK0046, 2013, Capacity Building

  41. Starred commitment Cross-Government Anti-Corruption Plan

    UK0047, 2013, Anti-Corruption

  42. Starred commitment Company Beneficial Ownership Information

    UK0048, 2013, Anti-Corruption

  43. Access to Police Records

    UK0049, 2013, Justice

  44. Transparency in Construction

    UK0050, 2013, Infrastructure & Transport

  45. Legislative Openness

    UK0051, 2013, Anti-Corruption

  46. Whistleblowing

    UK0052, 2013, Anti-Corruption

  47. Open Contracting

    UK0053, 2013, Anti-Corruption

  48. Open Contracting Scotland

    UK0054, 2013, Anti-Corruption

  49. Starred commitment International Aid Transparency

    UK0055, 2013, Access to Information

  50. Health Care Data

    UK0056, 2013, Access to Information

  51. Open Policy Making

    UK0057, 2013, E-Government

  52. Sciencewise

    UK0058, 2013, E-Government

  53. Publication of Draft Legislation

    UK0059, 2013, Open Parliaments

  54. OpenDataCommunities Programme

    UK0060, 2013, Access to Information

  55. PSI Re-Use Directive

    UK0061, 2013, Access to Information

  56. Starred commitment Extractive Transparency

    UK0062, 2013, Access to Information

  57. Ensuring a Clear Process to Support Reduction in Collection of ‘Unnecessary Data’

    UK0024, 2011, E-Government

  58. Developing Data.Gov.Uk and Identifying Other Digital Channels to Support Users

    UK0025, 2011,

  59. Evidence and Databases Behind Policy Statements

    UK0026, 2011, E-Government

  60. Data Underlying Surveys

    UK0027, 2011, E-Government

  61. Examining Ways for Improving the Use of Existing Published Data

    UK0028, 2011, E-Government

  62. Stimulate the Market for Innovative Use of Open Data

    UK0029, 2011, Access to Information

  63. Spend up to 5% of Budget Support on Accountability

    UK0030, 2011, E-Government

  64. Include the OGP Eligibility Criteria to Determine Readiness for UK Budget Support

    UK0031, 2011, Aid

  65. Publish Aid Information from All ODA Government Departments

    UK0032, 2011, Aid

  66. Use a Single Domain for Government Services

    UK0033, 2011, E-Government

  67. Mandate ‘Channel Shift’

    UK0034, 2011, E-Government

  68. Go Online for All Consultations

    UK0035, 2011, E-Government

  69. Develop Practical Guidelines on Departmental Access to Internet and Social Media

    UK0036, 2011, Civic Space

  70. Open Data and Application Interfaces in Ways That Encourage Businesses

    UK0037, 2011, Access to Information

  71. Create Cross-Government Standards on APIs

    UK0038, 2011, Public Participation

  72. Establish Standardised Formats for User-Satisfaction Data

    UK0039, 2011, Public Participation

  73. Provide Government Documents in Open Standard Format

    UK0040, 2011, Access to Information

  74. Implement Crowd-Sourcing and Engagement Processes

    UK0041, 2011, Public Participation

  75. New Power to Secure Release of Valuable Datasets

    UK0001, 2011,

  76. New, Higher Cost Cap for FOI

    UK0002, 2011, Access to Information

  77. Meaningful Disincentives

    UK0003, 2011,

  78. Maximum Time Limits

    UK0004, 2011, Access to Information

  79. Altered Procurement Rules

    UK0005, 2011,

  80. Mandating Phased Introduction of ‘Public by Default’

    UK0006, 2011, E-Government

  81. Formalising Public Data Principles

    UK0007, 2011,

  82. Having in Place an Open Data Compliance Monitoring Process

    UK0008, 2011,

  83. Making Clear the Minimum Citizens Can Expect on Publication and Quality of Data

    UK0009, 2011,

  84. Ensuring a Line of Continuous Improvement for Public Service Providers

    UK0010, 2011, Access to Information

  85. Encourage Continuous Improvement

    UK0011, 2011,

  86. Setting Out How Citizens Can Challenge Where There Is Failure in the Process

    UK0012, 2011, Public Participation

  87. Establishing an Obligation to Consider and Act on User Feedback

    UK0013, 2011, Public Participation

  88. Making Clear That Licenses Must Cover Free, Commercial Re-Use

    UK0014, 2011,

  89. Merge Information Asset Registers…Into a Single Data Inventory

    UK0015, 2011,

  90. Set Consistent Expectations of the Appropriate Quality of Meta-Data

    UK0016, 2011, Records Management

  91. For Data Co-Ordinated Across Government, Set Definitions

    UK0017, 2011, E-Government

  92. Introducing Corporate Responsibility at Transparency Board Level

    UK0018, 2011,

  93. Strengthening and Broadening the Public Sector Transparency Board

    UK0019, 2011, Anti-Corruption

  94. Bringing the Sector Transparency Board Model to Other Parts of Public Sector

    UK0020, 2011, Anti-Corruption

  95. Reviewing the Existing Governance and Regulatory Model

    UK0021, 2011,

  96. Establishing a Framework for Public Service Providers Data Inventories

    UK0022, 2011, Records Management

  97. Developing a Clear Methodology to Support Intelligent Inventories

    UK0023, 2011,

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