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Open Data and Information Governance in Health (BR0090)



Action Plan: Brazil National Action Plan 2016-2018

Action Plan Cycle: 2016

Status: Inactive


Lead Institution: Ministry of Health

Support Institution(s): Ministry of Health Federal Prosecution Service Oswaldo Cruz Foundation Planning Company of the Federal District Secretary of Health of the Municipality of Manaus, Brazilian Association of Public Health (Abrasco) Federal University of Minas Gerais (UFMG) University of Brasília Article 19 Brazilian Center for Studies on Health Institute of Social Economic Studies (INESC)

Policy Areas

Access to Information, E-Government, Health, Open Data, Right to Information

IRM Review

IRM Report: Brazil Mid-Term Report 2016-2018

Starred: No

Early Results: Did Not Change

Design i

Verifiable: Yes

Relevant to OGP Values: Access to Information , Technology

Potential Impact:

Implementation i



Lead government institution Ministry of Health Civil servant in charge for implementing at lead government institution Joaquim José Fernandes da Costa Junior Position - Department Director/ Unified Health System Monitoring and Evaluation Department (DEMAS/SE/MS) E-mail Telephone 55 61 3315 3511 Other involved actors Government Ministry of Health Federal Prosecution Service Oswaldo Cruz Foundation Planning Company of the Federal District Secretary of Health of the Municipality of Manaus Civil society, private sector, group of workers and multilateral actors Brazilian Association of Public Health (Abrasco) Federal University of Minas Gerais (UFMG) University of Brasília Article 19 Brazilian Center for Studies on Health Institute of Social Economic Studies (INESC) Status quo or problem/issue to be addressed Greater active transparency level, related to health data Main objective To continuously increase open data availability for society, in order to fulfill open government directives and social requests Commitment short description To have a bigger set of open data related to health, and to improve this continuously OGP Challenge addressed by the Commitment Improvement of Public Services Increase of Public Integrity Commitment relevance It has a direct impact on identifying public health solvable or mitigable difficulties stemmed from an active governmental data supply. Goal To have more indicators and information for management and knowledge generation related to health.

IRM Midterm Status Summary

7. Open Data and Information Governance in Health

Commitment Text:

Make available answers to requests for access to information, registered over the last 4 years, on an active transparency platform and increase the number of indicators and data of the Strategic Management Support Room (SAGE), being under civil society oversight

The commitment aims to continuously increase health open data availability for society, in order to fulfil open government directives and social requests, considering that it takes great effort for bettering data collection, validation and dissemination, besides the development of proper technologies. Not only will be increased the number of indicators and the pieces of information related with management and knowledge generation in the scope of the Strategic Management Support Room /SAGE/Ministry of Health, but also the answers to the requests for access to information from the last 4 years will be made available.

7.1 – Answered Information Request gathering (from 2012 to 2015)

7.2 – Analysis and categorization of Information Requests (when structured – SAGE; when non-structured – FAQ)

7.3 – System analysis, in order to check platform hosting

7.4 – Setting of data feeding flow at the platform

7.5 - Platform feeding (and/or SAGE)

7.6 – Platform launch

Responsible institution: Ministry of Health

Supporting institutions: Federal Prosecution Service, Oswaldo Cruz Foundation, Planning Company of the Federal District, Secretary of Health of the Municipality of Manaus, Brazilian Association of Public Health (Abrasco), Federal University of Minas Gerais (UFMG), University of Brasília, Article 19, Brazilian Center for Studies on Health, Institute of Social Economic Studies (INESC)

Start date: December 2016.. End date: October 2018

Context and Objectives

This commitment aims to expand the quantity of open data health records and to improve indicators for managing and planning health services. Specifically, the government proposes to publish responses to access-to-information requests over the last four years on an active transparency platform. It also proposes to increase the number of indicators and data on the Strategic Management Support Room (SAGE), with civil society collaboration. SAGE is a government-led initiative that collates online data, indicators, documents, and capacity-building tools for public health decision making.

Reflecting the importance of open data in the health sector, the Ministry of Health and the Health National Agency have published Institutional Open Data Plans. These are official strategic and operational plans to begin and sustain open data initiatives. A scientific institution run by the government, the Oswaldo Cruz Foundation produces research in this field and has introduced a quality seal (Selo Sergio Arouca) for high-quality open data releases.[1] In addition, KPMG released a global report stating that Brazil is increasingly releasing open data related to health. Such action closely relates to the institutionalization of ombudspersons systems in the health sector.[2]

This commitment looks to build on this past progress and address pending challenges. For example, open data related to health features low levels of use by the government, private sector, and civil society.[3] As Barbara Paes from Article 19 argued, the commitment has the potential to promote better government responses to citizen requests. She notes it could also enable the development and usage of more health indicators on service quality and openness.

Despite the importance of the topic, the commitment has a moderate potential impact. It focuses on opening and organizing public data, rather than using or incentivizing the use of data to solve a specific public problem. However, actively publishing responses to access-to-information requests, especially in a potentially sensitive area such as health, constitutes an important step forward.

The commitment’s level of specificity is high. The government has a clear and measurable deliverable: the publication of responses to access-to-information requests from the last four years. The commitment is relevant to the OGP values of access to information, and the use of technology and innovation, as it focuses on publishing responses to access-to-information requests through a digital platform.


The commitment has seen limited completion.

Implementation of the commitment’s milestones started in February 2017.[4] The government did not participate in the IRM interviews. (That is, it did not complete the online interview survey or respond to two email invitations for an in-depth interview.) From the civil society side, Article 19 completed a survey conducted by the IRM, confirming that meetings were being held. However, the organization provided no specific information to confirm the implementation of the milestones. The implementation meeting records from July 2017[5] suggest that several milestones have been substantially completed. But these relate to internal processes that could not be verified by the IRM.

For example, in terms of the collection of responses to information requests from 2012 to 2015 (milestone 7.1), the records from the July 2017 meeting state that the comptroller general had gathered the data for analysis. However, no record exists of the publication of this dataset.[6] The records also indicate that the analysis and categorization of information requests (milestone 7.2) were pre-conditions for the remaining milestones and have limited completion.[7]

The government’s published self-assessment report provides an explanation. It states that the milestones related to the collection of answered requests and the launch of the related platform were not carried out because of a change in the party responsible for managing the Electronic System of Information Services to the Citizen (e-SIC) within the Ministry of Health. This report acknowledges that less than 5 percent of the commitment was implemented by mid-2017.

It should be noted that during the implementation meetings, the government added new milestones to the commitment. One milestone includes a provision to open datasets related to two vulnerable populations (Quilombolas and indigenous populations). Another would create a collaborative platform with the data. These new activities could be important steps forward. Studies reveal that these two communities have lower access to health care than the rest of the country.[8] Further reflecting the gap addressed by these new milestones, civil society organizations have commented previously on the difficulty of finding precise data on these groups.[9]

By October 2017, milestones 7.1 and 7.3 were expected to be delivered, which puts the commitment behind schedule. It should be noted that the commitment is mentioned in the contextual information of the open data plan of the executive secretary of the Ministry of Health (2016-18). However, no detailed plan exists for the data mentioned in the commitment.[10]

Early Results (if any)

The main expected impact of the commitment is to achieve greater active transparency related to health data. Due to the limited completion of the commitment, it is too early to evaluate results.

Next Steps

Besides implementing the pending milestones, the government could focus on solving a particular public policy problem using the open dataset that is going to be released. This may include identifying specific uses for the indicators of health that will be generated with the dataset. In addition, beyond publishing responses to information requests, the government could explore how to increase the efficiency and effectiveness of information requests in the health sector. For example, it could explore reducing delays in responding to requests and publishing the data requested for all prior requests.

[1] 'New Seal of Fiocruz Evaluates Quality of Health Sites,' Government of Brazil, 1 June 2017,

[2] Claudia Collucci, 'Access to Health Data Grows, and the Public Network Remains Inefficient,' Folha de S.Paulo, 30 March 2017,

[3] Eokoe, 'Live: ‘Dados Abertos sobre a Saude,' YouTube, 1 June 2017,

[4] Open Government Partnership, Memoria de Reuniao—Compromisso 07,'

[5] Open Government Partnership, Memoria de Reuniao—Compromisso 07,'

[7] Ministerio da Transparencia, Fiscalizacao e Controladoria-Geral da Uniao, Relatorio de Status de Execucao de Compromisso,

[8] 'BIS. Bulleting of the Institute of Health,' Saude Portal de Revistas—SES, August 2010,

[9] Jose Mauricio Arruti, 'Public Policies for Quilombos: A Test of Conjuncture from the Example of Health,' Contexto Quilombola 3, no. 11 (July 2008),

[10] Ministério da Saude, Plano dados Abertos para o Ministério da Saude,


  1. Subnational Good Governance

    BR0100, 2018, Capacity Building

  2. Open Data Policy

    BR0101, 2018, Access to Information

  3. Scientific Data Governance

    BR0102, 2018, Access to Information

  4. Capacity-Building and Oversight on Nutrition Policy

    BR0103, 2018, Capacity Building

  5. Transport Data

    BR0104, 2018, E-Government

  6. Transparency and Oversight in Infrastructure Repair Processes

    BR0105, 2018, Capacity Building

  7. Increase Participation in Legislative Process

    BR0106, 2018, Capacity Building

  8. Urban and Rural Land Registers

    BR0107, 2018, E-Government

  9. Climate Change Policy Evaluation

    BR0108, 2018, E-Government

  10. Water Resource Management

    BR0109, 2018, Capacity Building

  11. National Electronic System/ATI implementation

    BR0110, 2018, Access to Information

  12. Open Data on the Federal Government

    BR0084, 2016, Access to Information

  13. Transparency of Public Funds

    BR0085, 2016, Capacity Building

  14. Access to Information Policy in the Federal Government – Promptness and Effectiveness to Information Requests

    BR0086, 2016, Access to Information

  15. Access to Information Policy in the Federal Government – Requesters’ Personal Information Safeguard

    BR0087, 2016, Access to Information

  16. Effectiveness of National Policy for Social Participation Mechanisms

    BR0088, 2016, Capacity Building

  17. Starred commitment Digital Educational Resources

    BR0089, 2016, Capacity Building

  18. Open Data and Information Governance in Health

    BR0090, 2016, Access to Information

  19. Prevention to Torture and Mean, Inhuman, or Humiliating Treatments in the Penitentiary System

    BR0091, 2016, Access to Information

  20. Innovation Spaces for Management in Public Services

    BR0092, 2016, Capacity Building

  21. Assessment and Streamline of Public Services

    BR0093, 2016, E-Government

  22. Open Innovation and Transparency in the Legislative

    BR0094, 2016, Capacity Building

  23. Fostering Open Government in States and Municipalities

    BR0095, 2016, Capacity Building

  24. Transparency and Innovation in the Judiciary

    BR0096, 2016, Access to Justice

  25. Social Participation in Federal Government’S Planning Cycle

    BR0097, 2016, E-Government

  26. Open Data and Active Transparency in Environment Issues

    BR0098, 2016, Access to Information

  27. Mapping and Participatory Management for Culture

    BR0099, 2016, Access to Information

  28. Probity Defense and Asset Recovery

    BR0033, 2013, Anti-Corruption

  29. Development of a Methodology for Social Participation on the Monitoring of the Pluriannual Plan (PPA) and on the Formulation of the Federal Public Budget

    BR0034, 2013, Capacity Building

  30. Development of the Monitoring System for the Social Movements Demands

    BR0035, 2013, Capacity Building

  31. Capacity-Building of Educators, Political Agents, Public Managers, Councilors for Social Policies and Community Leaderships

    BR0036, 2013, Capacity Building

  32. Encourage States and Municipalities to Endorse the OGP Four Principles

    BR0037, 2013, Capacity Building

  33. Implementation of the ODP.Nano

    BR0038, 2013, Fiscal Openness

  34. Strengthening of the Office of the Comptroller General (CGU)

    BR0039, 2013, Anti-Corruption

  35. Online Accountability of Resources for Education Within the National Fund for Education Development

    BR0040, 2013, E-Government

  36. Generation of Knowledge and Capacity-Building of Managers and Public Resources Operator’S Partners and of Councilors for Social Control

    BR0041, 2013, Capacity Building

  37. National Program for Strengthening School Councils

    BR0042, 2013, Capacity Building

  38. Development of a Unified and Interactive Information Panel on the Implementation of the Water for All Program, Which Can Be Publicly Accessed Through the Internet

    BR0043, 2013, Capacity Building

  39. Digital Inclusion of Health Councils

    BR0044, 2013, E-Government

  40. Starred commitment Development of Tools for Increasing Transparency and Enhancing Land Governance

    BR0045, 2013, E-Government

  41. Implementation of the Document Management Policy in the Federal Government

    BR0046, 2013, Capacity Building

  42. Development of the “Access to Information Library”

    BR0047, 2013, Access to Information

  43. Disclosure of Data from the Execution of the Union Budget and from Government Purchases

    BR0048, 2013, Access to Information

  44. Dissemination of the Public Open Data Culture to the Local Governments

    BR0049, 2013, Access to Information

  45. Development of Support Technologies and Licensing Models for the Disclosure of Open Data

    BR0050, 2013, Access to Information

  46. Disclosure of Information from Government Systems in an Open Data Format

    BR0051, 2013, Access to Information

  47. Corporative Information Management in Social Security (E-Governance)

    BR0052, 2013, E-Government

  48. Improvement of Active Transparency and of the Unique Health System’ Ombudsman Unit

    BR0053, 2013, Dispute Resolution & Legal Assistance

  49. Strengthening of the National Audit System of the Unique Health System (SUS)

    BR0054, 2013, Anti-Corruption

  50. Increasing Public Transparency of the Labor Relations Secretariat of the Ministry of Labor and Employment

    BR0055, 2013, E-Government

  51. Disclosure of Recommendations to Carry Out Public Audiences to Serve as Reference for the Government

    BR0056, 2013, Capacity Building

  52. Development of a Database of the Federal Public Administration Purchases Prices

    BR0057, 2013, Anti-Corruption

  53. Participatory Audits on the Constructions of Brazilian Host Cities for the 2014 FIFA World Cup

    BR0058, 2013, Anti-Corruption

  54. Development of an Indicators Model for Transparency of Brazilian Municipalities Institutional Development

    BR0059, 2013, Capacity Building

  55. Development of a Brazilian Portal for the Open Government Partnership (OGP)

    BR0060, 2013, E-Government

  56. Development of Monitoring Reports on the Electronic Citizen Information System (e-SIC)

    BR0061, 2013, Access to Information

  57. Encouragement of Social Participation

    BR0062, 2013, Anti-Corruption

  58. Formulation and Implementation of the Ministry of Defense’S Information Management Policy

    BR0063, 2013, Peace & Security

  59. Development of a Database of Administrative Documents Produced by Brazil’S Navy

    BR0064, 2013, Public Participation

  60. Open Educational Data

    BR0065, 2013, Access to Information

  61. Improvement of Data Transparency from the National Consumer Protection Information System (Sindec)

    BR0066, 2013, Access to Information

  62. Restructuring of the Brazilian Federal Government Transparency Portal

    BR0067, 2013, Access to Information

  63. Electronic System for Public Consultations

    BR0068, 2013, E-Government

  64. Improvement of Health Services Through the Increased Use of the National Health Card

    BR0069, 2013, Health

  65. Participatory Development of the Federal Ombudsman System

    BR0070, 2013, Justice

  66. “Brazil Transparent” Program

    BR0071, 2013, Access to Information

  67. Development of the Unique Health System Letter

    BR0072, 2013, Health

  68. Digital Cities Project

    BR0073, 2013, E-Government

  69. Development of the National System for the Promotion of Racial Equality (SINAPIR)

    BR0074, 2013, Human Rights

  70. Improvement of Mechanisms for Social Participation in the Formulation of Public Policies

    BR0075, 2013, Public Participation

  71. Brazilian Portal for Social Participation

    BR0076, 2013, E-Government

  72. Open Data in the Ministry of Justice

    BR0077, 2013, Access to Information

  73. Improvement of the Pro-Ethics Company Registry

    BR0078, 2013, Private Sector

  74. Expansion of the Database of the National Debarment List (CEIS):

    BR0079, 2013, Anti-Corruption

  75. Monitoring of the National Plan for Food and Nutrition Security (PLANSAN)

    BR0080, 2013, Health

  76. Development of an Information System on the Maria Da Penha Law (Law No. 11,340/2006)

    BR0081, 2013, Gender

  77. Development of Processes for Prior Consultation Under the 169 Convention of the International Labour Organization’S (ILO)

    BR0082, 2013, Labor

  78. Redesign of the Current Protection Programs

    BR0083, 2013, Dispute Resolution & Legal Assistance

  79. Capacity Building Programs

    BR0001, 2011, Access to Information

  80. Distance Education Program

    BR0002, 2011, Access to Information

  81. Guide for Public Officials on Access to Information

    BR0003, 2011, Access to Information

  82. Information Services Model

    BR0004, 2011, Access to Information

  83. Diagnostic Study on the Transparency Values of Executive Branch

    BR0005, 2011, Access to Information

  84. Diagnostic Study on Role of Federal Ombudsman Units (FOUs)

    BR0006, 2011, Access to Information

  85. Research Study to Identify the Demands of Society in Regard to Access to Information

    BR0007, 2011, Access to Information

  86. Preparation of a Catalogue of Public Data and Information

    BR0008, 2011, Capacity Building

  87. Organization of a Meeting of the Inter-Council Forum Multi-Year Plan 2012–15 (Phase 2)

    BR0009, 2011, Capacity Building

  88. Organization of the 1st National Conference on Transparency and Social Control (1St Consocial)

    BR0010, 2011, Capacity Building

  89. Organization of the 1st National Open Data Meeting

    BR0011, 2011, Access to Information

  90. Organization of the National Seminar on Social Participation

    BR0012, 2011, Capacity Building

  91. Partnership with the Digital Culture Laboratory

    BR0013, 2011, Access to Information

  92. Partnership with World Wide Web Consortium (W3C) Brazil

    BR0014, 2011, Access to Information

  93. Development of the National Open Data Infrastructure (INDA)

    BR0015, 2011, Access to Information

  94. INDA Capacity Building Plan

    BR0016, 2011, Access to Information

  95. INDA Awareness- Raising Activities

    BR0017, 2011, Access to Information

  96. Launch of the Brazil Open Data Portal

    BR0018, 2011, Access to Information

  97. Resource Transfer Agreements and Contract System (SICONV)

    BR0019, 2011, Access to Information

  98. Aquarius Platform

    BR0020, 2011, Access to Information

  99. Data Warehouse

    BR0021, 2011, E-Government

  100. Restructuring the Transparency Portal

    BR0022, 2011, Access to Information

  101. Facilitate Access to Specific Databases

    BR0023, 2011, E-Government

  102. Interactive School Development Plan

    BR0024, 2011, E-Government

  103. Control Panel for the Integrated Monitoring and Oversight System (Public Module)

    BR0025, 2011, E-Government

  104. United Suppliers Registry (SICAF)

    BR0026, 2011, Access to Information

  105. Registry of National Education Prices

    BR0027, 2011, Anti-Corruption

  106. Contractual Management of IT Services

    BR0028, 2011, Anti-Corruption

  107. Implementation of Pro-Ethics Company Registry

    BR0029, 2011, Private Sector

  108. Systemic Integration of Ombudsman Units

    BR0030, 2011, Dispute Resolution & Legal Assistance

  109. Continued Training for Public Ombudsman Units

    BR0031, 2011, Capacity Building

  110. Public Services Portal

    BR0032, 2011, Access to Information

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